There is a lot of information on the web in many different places, and it is difficult to know what information out there is accurate. We have compiled a list here of web resources that we have found helpful in the THRIVE Network. If there is something specific you are looking for, please reach out to us and we will try to help.
The AARP Family Caregiving site offers education for in home caregivers on medical financial and legal issues, caregiver life balance, local resources, and personal stories, as well as a support helpline.
AFTD promotes and funds research into finding the cause, therapies and cures for frontotemporal degeneration. They also offer information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers.
Authors Beth Spencer and Laurie White, both social workers, have worked in the field of dementia care since the 1980’s, with careers focusing on counseling family caregivers, developing programs and improving care for residents living in dementia care homes, educating health care professionals, and teaching aging-related courses at the University level. Their website is a home for their three dementia care guide books written to help caregivers with challenges and choices. Also on their site is a blog where common issues in caregiving such as challenging behaviors, getting dressed, and moving a parent or spouse are discussed.
For 40 years Family Caregiver Alliance has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions. The site provides a learning center for caregivers including addressing caregiving issues and strategies as well as videos and webinars. The site also offers FCA CareJourney, which is a secure online service for quality information, support, and resources for family caregivers of adults with chronic physical or cognitive conditions such as Alzheimer's, stroke, Parkinson's, and other illnesses.
LBDA works to raise awareness of Lewy body dementias (LBD), promoting scientific advances, and supporting people with LBD, their families, and caregivers. LBD is a complex disease that can present a range of physical, cognitive, and behavioral symptoms. It dramatically affects an estimated 1.4 million individuals and their families in the United States.
The National Caregivers Library is one of the most extensive libraries for caregivers that exist today. Find hundreds of articles, forms, checklists, and links to topic-specific external resources, organized into logical categories on an easy-to-navigate site.
The National Institute on Aging site includes many resources from the National Institutes of Health on Alzheimer’s disease and other forms of dementia, including information on clinical trials and current advances in scientific research.
Universal Dementia Caregivers (UDC) is a non-profit organization dedicated to educating caregivers, families, and communities supporting loved ones with Alzheimer’s and other dementia-related diseases. UDC offers training and educational opportunities on a wide variety of topics related to dementia care.
The VA offers a Caregiver Support Program for caregivers of Veterans, which includes training, educational resources, multiple tools for caregiver success, and a Caregiver Support line (855-260-3274) which can connect caregivers to local support systems.